HAPPY NEW YEAR….better late than never xx

HAPPY NEW YEAR

I am hoping as I type this tonight, that it will be posted before February 1st, to keep my promise to myself to POST my BLOG once a month, with a view to doing more. So I am NOT being distracted by TV, Twitter and Facebook tonight, promise!

 

Meet one of my sharp, smart Robins on my Patch

Meet one of my sharp, smart Robins on my Patch

CRAZY 2014

Those of you, who have read my previous Blogs, will have some idea of just what Iv been up to in 2014, coming out of a tough few years of operations related to my Polycystic Kidney Disease.

HOWEVER, blessed having the wonderful gift of a Kidney from my youngest Sister Melissa on the 14th February, 2013 made my whole LIFE a whole lot different and in reading my Blog, I hope you will see just how much. I will be opening up more in 2015 with some short stories, good and bad, I feel need to be shared. For awareness, inspiration, empowerment and patient safety.

Take the time to Talk, Share with your Loved Ones and Ring please

Take the time to Talk, Share with your Loved Ones and Ring please

GOODBYE 2014, ‘BOOTS ON’ FOR 2015!!!

http://www.chorley-guardian.co.uk/news/local/how-lorraine-s-spreading-the-word-after-her-kidney-ordeal-1-7025555

PURPLE CHICK ~ WHERE I AM NOW

Well Millie where to this YEAR

Well Millie where to this YEAR

I am still a Patient with Polycystic Kidney Disease, being checked still from having endured a long journey to my Kidney Transplant on 14/2/13. My KIDNEY maintenance is priority and have to take my anti rejection drugs for the rest of my life. My bloods are checked regularly and my kidney condition is kept under control. I feel very positive, I eat healthy and walk as much as I am able and laugh a lot and if I find that not happening, then I do something about it.

I had to learn to empower ME on my journey, with my own Patient Care. I also became aware of other patients around me and their particular worries and experiences, therefore, this then became my main focus coming into 2014.

My interest and main focus is The Patient, Renal being the Arena I am familiar with alongside my voice for Organ Donation, although I can relate to other illnesses too.

I have given of me voluntarily on Facebook Renal Groups, inspiring, supporting, making aware, guiding and empowering patients in their care and with their massive psychological journeys, as was mine.

I was successful with my Fistula Awareness Campaign, which took me to the NKF as a Patient Speaker and to the Involve Health Conference with my abstract around Fistula Awareness too.

I engage easily and am a natural connector, my transferable skills, just being me seriously, from years as a Manager working within teams, team leader, good listener, negotiator, collaberator, organiser of races for charites, events, fundraising and giving Ground Breaking Customer Service easily, which are useful in all areas I am connecting with.

image

Meet Quibela, we were meant to meet! Feel gifted to have met her during Transplant Week at Westminster and in Manchester. Sadly she died in September, she believed in me and we were going to be good friends. Complications on dialysis with an infection, she was not strong enough to survive. Why do I do what I’d do….Simple! Bless her, she had a smile to light up a room.

 

I am still a Patient Advisor to the BKPA, a Committee member of my local Kidney Patient Association, Patient Leader on NHS Steering Group, plus still help many on FB and Twitter. My voice is important out there I know that more than ever now, as a Patient and as a friend to many, who are struggling. From the positive feedback and thanks I do get, it is humbling, but I need to stress it is ‘my way’ and do not do for accolades.

 

I am empowering and encouraging and inspiring many for the good of themselves and others they come into contact with.

I am now coming into 2015, wanting to get my voice put to use to make more ACTIVE changes, small changes, changes that can be easily done with simple education and practice. Ground Breaking Customer Service! Simple.

My many interests get me involved with many people in my Community. It's not every day you chase a Stormtrooper round Morrisons at a Charity Event. Just missed Yoda I did! Like him I do...

My many interests get me involved with many people in my Community. It’s not every day you chase a Stormtrooper round Morrisons at a Charity Event. Just missed Yoda I did! Like him I do…

 

I feel I have a lot to bring to any of the discussions going on amongst groups I get involved with and hope I can still, from last year’s experiences, bring my Voice to the table from my unique prospective. However, I am always respectful of others I collaberate with. My views on here, Facebook, Twitter, in the REAL world, are my views and what I feel or hear from the Renal Community.

Dreamer by the Sea. My time out is important to me. It's important to all of us in Life.

Dreamer by the Sea. My time out is important to me. It’s important to all of us in Life.

DIALYSIS DE-COMMISSIONING

From my last Blog in December, the NHS England surprise proposal in November of De-Commissioning Dialysis and transferring the care of Dialysis Patients to local Clinical Commissioning Groups, well this hung over ME coming into 2015.

I was outraged, as many were, at the lack of respect I feel and still feel to the Renal Community at being treated in this way.

The battle began in November and details of what the detail was, as this is quite complicated is now on my newly created Facebook Page, which has come about, as my Facebook Account Page, I felt had to be separate.

I loved LIVE RADIO last year. This was at my local Chorley FM. {Check out my earlier show on Sean's Radio Show at North Manchester earlier in the year. Thanks to both of these for believing in ME.

I loved LIVE RADIO last year. This was at my local Chorley FM. {Check out my earlier show on Sean’s Radio Show at North Manchester earlier in the year. Thanks to both of these for believing in ME.

PURPLE CHICK’s RENAL VOICE

{NB: NO I am not forming a Choir, as one good friend asked..so funny}

1st Anniversary of Transplant. First first fundraising event as part of A Wish for a Kidney Campaign. Valued Family and Friends

1st Anniversary of Transplant. First first fundraising event as part of A Wish for a Kidney Campaign. Valued Family and Friends

https://www.facebook.com/PCRenalVoice?ref=bookmarks

I needed this as a mini blog, a way of updating Renal friends of what was going on more often and what I was actively doing. I found it hard last year at keeping a log of what I was doing too, although tried!! So hope it works and feel free to check me out. My intention is to add something daily and not been doing too bad!!

DIALYSIS ~ WHAT DO THEY KNOW

I wrote this POEM whilst on DIALYSIS in 2012 and have shared earlier in the year, but share now for ALL Dialysis Patients on their Daily Struggle, as I talk to hundreds every week and same issues, experiences, struggles still exist and many of these need ORGANS, some waiting up to 18 years.

As a Coping Strategy, I used to write Poems on Dialysis, kept me positive and released my feelings with my own sense of humour. You learn very quick to laugh at yourself in the face of struggle. But serious side to all I share.

MY FISTULA KEPT ME ALIVE....PROUD of MY LIFELINE

MY FISTULA KEPT ME ALIVE….PROUD of MY LIFELINE

A DAY IN THE LIFE OF MY DIALYSIS 2011-2013

Looking through the window, it’s rain today
That’s ok, as I can’t go out to play
Four hours to go on the Matrix, phew needles went in ok
Using my Emla cream kept the pain away
But lady across from me, new on here screams in pain
as the needles go in the wrong way
My Fistula has veins, juicy & strong
The poor ladies’s veins being so deep & feint, make it easy for needles to go astray
Sickness feeling, 1 hour in, fading now, but headache not gone
3 litres of fluid to come off my overloaded body, keeping strong Where is it all coming from?
I’m skin and bone, but the machine just keeps sucking me till fluid gone!!
Aah Tea & Toast at 10 is a treat, when the nurses finally get to me
As it’s hard for some to drink, with only one arm free
Head tired, need to sleep, catch up on last nights no rest
With uncomfortable kidneys, liver, aching legs & chest
Buzzers going off now, someone crashed or being sick again
Roll on 6 when i can get off this machine
Gather my bags, iPad, book, picnic box and go home to my haven
Home again, tears of tiredness, loneliness, my chair waiting to hand
Slowly take off my coat & my Fistula Awareness Band
Numb, no thoughts, aching like nothing else, paracetomal for me Two hours gone sat here, maybe should have some tea!
Naah, no energy, just going to go to bed
Snuggle my dog and bury my head
Safe now, home in my room with a view
Sleep now and wait till 5 for the moors & straight on the loo!

Lorraine Pooley {dialysis 2012}

Like Gracie I like to always look at the Bigger Picture in Life

Like Gracie I like to always look at the Bigger Picture in Life

 

So just made Posting my BLOG…and now of course on Valentines day, 14 days from when this WILL be posted, is my 2nd Anniversary. So you many be lucky and get the pleasure of another of my Blogs before March!!!

GIVE IT YOUR ALL FRIENDS

GIVE IT YOUR ALL FRIENDS

 

I want to say I CELEBRATE everyday, but it is important to share this GIFT, as I use my story for awareness for the thousands waiting for organs still and the ones about to need one. Life changes for many in a minute.

https://www.facebook.com/lorraine.pooley.820?ref=bookmarks

Well my Deers......till my next Blog...x

Well my Deers……till my next Blog…x

 

FORTHCOMING KIDNEY EVENTS FOR YOUR DIARY

World Kidney Day is

http://www.worldkidneyday.co.uk/campaign-materials/

I am planning for World Kidney Day on the 12th March, anyone wishing to support me on the day by inviting me into your Business, Group, Class, Team, please connect with me @purplechick820@gmail.co.uk.

I am happy to come and chat, present in a way that is not pressured, just informative with my DR Martens, Voice and my ethos in life ‘Emphasis on Fun’. You may just be surprised how I can bring laughter into something very serious, Try ME. It can be either side of 12/3/15

The Renal Charities will all be involved and where I am needed or where I can be of help I will do. More to come in next post.

Thankyou

PC

Through the Mangle But out the Other Side BOOTS ON

Through the Mangle
But out the Other Side
BOOTS ON

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