A very berry Xmas hello and I just want to say again, I am so grateful from my Kidney, to all of you following me and with such lovely words.
I am sorry to have not written a Blog for some weeks now, it is something I am committed to and missed doing, however, 2015, there will be more ‘VOICE’ from me, as I have so much to share.
My time has been taken up recently with personally chasing my tail with the NHS, with various issues concerning my own Health, the constant chasing up of things, lack of communication, understanding and the stress upon our NHS Staff, which in turn is affecting Patients like me still. Empowerment is going to be even more a thing of the future. However, what about the Patients without a voice, too sick to even think about….mmmm.
HAEMODYALYSIS /RENAL DIALYSIS THREAT
In August 2014 Dialysis Funding was threatened, however, due to lots of PATIENT POWER voices, we showed the NHS and shocked them into reevaluation.
CLINICAL COMMISSIONING GROUPS proposal? What?
However, shockingly last month, more proposals to how DIALYSIS was to be implemented in April 2015 were announced by NHS ENGLAND, proposals that our SPECIALIST Service for DIALYSIS be turned over to Clinical Commissioning Groups, which is so WRONG and to me clearly demonstrating the misunderstanding of the DIALYSIS LIFE by the NHS!!
It has angered Patients, Renal Charities, some MPs and others connected to Renal Health and causing massive upset to many on Dialysis or just about to go onto Dialysis, about their future Patient Care and Safety from April 2015.
I have had endured Dialysis treatment and I have seen, heard, experienced, lived the struggle of being on a busy Dialysis Unit, understaffed and stretched to the point that patient safety was compromised. So now NHS are even think of doing this to Dialysis Patients, when the system is already stretched beyond current funding, is in need of a turn round, in my opinion.
RENAL FIGHT GOES ON….RECOGNITION PLEASE?
Renal Patients are now again having to Fight for yet more Recognition of a disease grossly misunderstood and the Psychological Pathway not being addressed. At this point RIGHT NOW in time, Patients are being asked to write to their MPs and complete forms outlining their treatment, to be sent to NHS England, to share the DIALYSIS treatment they have, to give insight for proposed move…. BUT in doing this it’s NOT OK for Patients to be worried about the possible changes to their treatment, disgusts me.
LINKS to DIALYSIS FIGHT
This Link explains the situation, which is, as you will see is complicated, as nothing has been shared clearly anyway…….
MY PERSONAL CAMPAIGN…..emotionally driven words, but gets the message across. PLEASE SIGN and SHARE, every signature counts…Thankyou.
AUTUMN…..MONTH OF COLOUR, RECYCLING, LEAVES…BERRIES
On a more POSITIVE note, AUTUMN has been one of the nicest ones I have been able to enjoy for some years, it has presented the most wonderful colours and finds, wet at times, but all adding to wonderful venues I have been to. What has added to my Autumn is joining a Funghi Group, which has opened my mind to this very wonderful, fairy like world, which suits me, being into Fairies etc.
I have been making great use of my easy to use Samsung Camera, which is inspiring me to look at so many different beauties out there on my explorations. I have always loved My local Woodlands, Trees and surrounding Nature. However, this Autumn, Funghi, as mentioned becoming a real focus for me, has become a therapy, taking my mind of stresses I have had. Plus now I have become more aware of just how beautiful, colourful and the abundance of varieties there are.
…………ooooh YES FUNGHI Galore!!
The Funghi to nature is important and to Foragers it seems very much, so I say KEEP OFF!! I am totally against Foraging and very much into preserving Nature and the beauty we have. But sadly, there is greed, selfishness and lack of respect from many and seen so much evidence of this on walks and through social networking and it’s stripping our woodlands and in many places unlawful quantities being removed.
BOOTS ON PURPLE CHICK …….made a great team this year YES
It’s been a Crazy Year and I have not been able to share more my of Blog stories with you, but I will make great effort to do this in 2015 and everyday in my life brings something unique or I make things happen. Life is never boring wearing my boots.
RENAL FRIENDS OLD, NEW & DICEASED
I have been blessed by the belief of many new friends, followers, acquaintances this year, keeping me strong and I achieved what I set out to create, but also achieved in areas Iv been invited into and Iv taken me down many interesting paths.
All achieved is with THE RENAL PATIENT in mind, whatever Iv done or given, I have not shouted from the roof tops and actually don’t get excited when I do achieve, as it’s not why I do it, I do it, with the support of many as it’s what is NEEDED and it’s ME. Many Patients, who cannot VOICE, put their trust in me to get a message out there and I always feed back. The more that have Transplants, the more will empower and do the same I’m convinced and pray for them.
So PLEASE keep in mind our Dialysis Patients on Machines 4 hours, 3 times a week, cold, scared, struggling, sick, lonely and vulnerable, many going home alone! Support your local Dialysis Unit and a spare fleece will make someone’s day…4 hours cold on a machine is no fun, believe you me!!
We need more Donors joining our register, please see the link below and join in the NHS ORGAN DONATION XMAS WISH CAMPAIGN ……
MY passion to NHS ORGAN DONATION on my FB PAGE is growing slowly and reaching more, but would like to reach 500 ASAP to allow me to get more insights and reaches with your help, please take a look, add comments and ask me anything.
This VOLUNTARY CHICK is having some ME time over Christmas with my 3 young Adult Children, my Grandson, my Dog. Millie and the Chicks. It will be a time of laughter, reflection, Superheros, Star Wars, food and more food, but most of all FAMILY TIME.
BOOTS ON. WISHES
Purple Chick. Xxxxxxxxxxx